Inherited Colorectal Cancer and Familial Polyposis Registry

The Inherited Colorectal Cancer and Familial Polyposis Registry at Washington University School of Medicine and the Siteman Cancer Center offers clinical resources to families with hereditary colorectal cancer syndromes with a goal of reducing the incidence of colorectal cancer.

What are inherited colorectal cancer syndromes?

There are certain gene mutations that cause hereditary colorectal cancer syndromes and can lead to colorectal cancer. These syndromes include:

  • Familial adenomatous polyposis (FAP)
  • Lynch syndrome (hereditary non-polyposis colon cancer, or HNPCC)
  • MYH-associated polyposis (MAP)
  • Peutz-Jeghers syndrome (PJS)
How common is hereditary colorectal cancer?

Hereditary colon cancer syndromes cause up to 6 percent of all colon cancers in the U.S.

Enrolling in the registry

By enrolling in the registry, patients gain access to educational events and relevant literature. They’ll also receive timely reminders for follow-up appointments to ensure they are receiving the best preventive care possible.

How much does it cost to join the registry?

Membership is free, so we highly encourage patients with hereditary colorectal cancer syndromes to become involved!

What benefits does the registry offer?

When you join the registry, you’ll get access to a number of benefits. These include:

  • Educational events and literature on inherited colorectal cancer syndromes
  • A multidisciplinary care team, including colorectal surgeons, gastroenterologists, genetic counselors and a registry coordinator
  • Opportunities to become involved in research related to hereditary colorectal cancer syndromes
  • The latest updates on genetic testing, screening guidelines, research findings, current studies and other pertinent news